Living with or caring for someone with a rare disease can be difficult. Finding resources and support from people who understand the unique challenges of vascular Ehlers-Danlos Syndrome (vEDS) can be even harder. We Are vEDS was created to serve as a source of information and support for the vEDS community, curated by experts and those living with the unique challenges of the condition.
LEARNING ALL ABOUT vEDS
Read up on the cause, signs and symptoms, management, and more.
BUILDING A CARE TEAM
See who the various specialists are that treat and manage vEDS.
Learn about genetic testing and why it is so important in vEDS.
LIVING WITH vEDS
Find content created by real people affected by vEDS, and see how they manage their challenges.
FINDING THE RIGHT TOOLS AND RESOURCES
Download tools and other resources to help you navigate your unique vEDS experience.